Carers Connect Int logo Support, friendship and understanding for carers worldwide
Home About Us Search Login/Register Contact Us
Quick Search
Welcome to Carers Connect International

Story of the Month

I Feel Invisible


 
 
  My story is really about having a bit of a moan.  As a carer our views and opinions are important, but I never feel as though anyone listens to my view-point, particularly the professionals involved in my sons care..
 
  Whenever I go along to the meetings that my son attends with his psychiatrist, I sit there like a lemon and I have my say at the end, but it is often skimmed over and no real answers are given to my concerns. atlas_anim.gif
  
  It’s as if I’m sitting in the room but I might as well not be there for all the difference it makes.  Is anyone else out there nodding in agreement at this point? Cos I could sure do with some company ....!
 
  Quite often my son will say he is fine when the opposite is the case and I feel as his full-time carer my input IS IMPORTANT – in fact, CRUCIAL, to his on-going care and well being.   The psychiatrist is definitely not getting the full picture when he asks my son “HOW ARE YOU” … as he often replies, “FINE … ALL OKAY.”  I'm normally nervously biting my lip or chewing my nails at this point, waiting patiently for my turn, so I can say, "NO ... EVERYTHING IS VERY FAR FROM OKAY."
 
  I understand that they are HIS appointments and I’m only present because HE wants me to be, but as his full-time carer I know him so well and what he is going through at any given time and feel as though I should have more of a voice. the psychiatrist may only see him four times a year but I see him 24 hours a day 7 days a week .... there's quite a difference.
 
  I would love to hear from other carers on their experiences with professionals/psychiatrist(s), and in particular any tips to help me deal with my situation.  Perhaps as a carer yourself you felt the same once and overcame your difficulties.
 
  I did read the story on here a couple of months ago about a carer who approached PALS (the patient advice & liaison service) because she was unhappy and I am wondering whether to do that.  It might help ... or perhaps biting the bullet and phoning the secretary of the psychiatrist and explaining how I am feeling about the situation.  It is extremely frustrating and I might not be a professional but I have had many years of experience and have such a lot to offer to these meetings if only SOMEONE would listen.
 
  I hope other carers out there will share their experiences and offer some useful advice, I would be eternally grateful.
 
Kind regards,
 
 
 
Beth  
  
 
Helpful tip for Beth from carersconnectint.com: "a trouble shared is a trouble halved: having the courage to speak out is the first step & a huge leap in the right direction

Archive

Your Carer Story
Mistaken identity: Bag Lady, Carer or Patient
Charity Rethink offers Carer Support
Tips from EPP: Break the Symptom Cycle & Reduce Anxiety
Happy New Year .. is it a good one?
Dont be blue!!
Thrifty Spending: be a Credit Card Tart
Don't stay down in the dumps for long!
Took CCI's advice
Total Pampering
Take smaller steps - you'll get there in the end
A New You!!
My New Year Resolution
A helping hand!
A Big Thank you to Elaine
Carersconnectint.com to the Rescue!
Thank you Carer Buddy
Calling Maxeytrisha1 … Steve to the rescue!
All is not lost Beth, Tracey to the Rescue!!
Looking After Me - Free EPP course
I Know How You Feel
A No.1 Tip from Mel
Josie is “a little star”
Charity Crossroads lightens the load
‘Fresher’ meets experienced ‘Carer’
I'm a moany old minny but I'm not alone